Hosted by Endurotech Racing (EDR) in conjunction with Racing for James.
The Leukodystrophy 6 Hour aims to raise funds and awareness for Leukodystrophy Australia helping individuals and families impacted by hosting and live broadcasting a 6 hour team GT3 endurance race on iRacing.
A little about Leukodystrophy Australia:
Supporting individuals & families impacted by Leukodystrophy
People diagnosed with Leukodystrophy, their families and carers, are on a life-long journey of largely the unknown. In the main, there is no treatment or cure, diagnosis can be problematic and protracted, misdiagnosis happens. Devastation for families is long, huge, and life changing.
Recognition and funding into genomics, has seen numbers of our new contacts double in the past 6 months compared to the previous 12 months.
We support our members, nationally, urban, rural and regional, with empowerment throughout their Leukodystrophy journey, from pre diagnosis and beyond. We offer support by fostering member connections, providing service linkages, education, advocacy, crisis support, promoting current trends in treatments and research.
Our holistic approach improves well-being of the diagnosed person, families and carers, by empowering their decision making in life and health, across multiple stakeholders. Friendship opportunities, majorly, and importantly, reduces the often overwhelming sense of isolation and anguish. Leukodystrophy Australia offers time, comfort, practical support.