Keeping "the cocoon girl" ALIVE

Ms. Jeanette Clabassi, Once a Former actress, dancer, singer, and model, also led a very successful entrepreneurial corporate career in high-profile positions and was building her empire until her world crumbled in 2017.

Leading a silent life of chronic crippling pain, suffering, and battling with constant stomach pains, unable to eat on occasions out always in private, as meal times would not be at the dinner table but lying sideways on the floor to be able to stretch my tummy to allow food in, repeatedly dismissed by doctors who said her pain was due to an eating disorder, finally, after many years she is overwhelmed by having an answer to all of her pain...
In November 2017 Jeanette was finally diagnosed with abdominal cocoon syndrome - a rare condition she was born with that causes her intestines to twist into a 'butterfly cocoon' shape inside her stomach, wrapped by a fibrous membrane. It took her moments from dying on the floor when put into the mental

Ms Clabassi is fighting another battle after being rejected from the National Disability Scheme (NDIS).

'They are saying they can't classify it as being a permanent disability. Then what the hell is it? Is it the cold? Is it the flu?' she told Nine News.

'How is having an ileostomy, having a stoma and seven laparotomies not permanent?'

A spokesperson for the National Disability Insurance Agency (NDIA) said it couldn't comment on Ms Clabassi's case but that the NDIS was 'never intended' for chronic or serious illnesses.

Jeanette was placed in a month-long coma due to surgery complications in 2017, She then found out her family had been told she had 24 hours to live and to 'start planning a funeral', Thankfully she woke.
After spending 10 months in hospital, she was finally allowed home - but she still has a long way to go to as the condition is incurable.
Jeanette is currently relying on Centrelink after they finally granted her disability support pension last month, but said it is not enough.
'I still can't get out of bed. I need a monkey bar and certain equipment at home to be able to function.
'I need care at home, I need to be able to get around. I need to get to appointments which I can't get to. I have got to shop and cook for myself but I can't do anything because I'm now also vision impaired.

It has now reached the point where Jeanette needs as much help as possible, She needs funds so that she can have the much needed operations in order to STAY ALIVE.
So please, help Australia's Cocoon Girl,
help her get her life back,
help her gain strength to be able to get out of bed,
help her walk again,
help her smile,
help her STAY ALIVE!

View the full stories below:

https://www.dailymail.co.uk/femail/article-8430719/Jeanette-Clabassi-Melbourne-denied-help-NDIS-despite-crippling-condition.html

https://www.9news.com.au/national/ndis-rejects-melbourne-woman-with-ultrarare-cocoon-syndrome/6cd37de1-40bf-4137-875e-479354650c01