In 2014 my wife and I founded TSC Heroes which has raised over $100,000 to support people living with Tuberous Sclerosis Complex a rare and complex disease that effects every major organ in the body.
We were inspired on this journey by our beautiful daughter Zarah who battles the conditions of this disease everyday. Although it’s very difficult for us and we have some dark days we have the financial and emotional help to cope the best we can...this is not the reality for many families living with TSC. It was for this reason TSC Heroes was born to raise much needed awareness and funds to help families living with this complex condition.
TSC Like many rare diseases receives no government funding so any support you can large or small makes a huge difference to Australian families living with TSC.
TSA supports and empowers people affected by Tuberous Sclerosis Complex (TSC) through access to the best treatment options, up to date information and support. TSC tumours affect the brain, skin, heart, lungs and kidneys often causing epilepsy, developmental delay and autism. There is no known cure.
About Fundraiser
Jeff Place
MONA VALE, NSW
Tue, 15 Jun 2021
Hilary Coolican
$ 20
Congratulations!
Tue, 15 Jun 2021
Kylie Harris
$ 20
Tue, 15 Jun 2021
Ann Eckert
$ 50
Well done on your ironman! That is a great time. FYI I work with your mum.
TSA supports and empowers people affected by Tuberous Sclerosis Complex (TSC) through access to the best treatment options, up to date information and support. TSC tumours affect the brain, skin, heart, lungs and kidneys often causing epilepsy, developmental delay and autism. There is no known cure.
Congratulations!