Steve, Michael & Bobsy's Run for Milla

Milla has a chromosome deletion known as 22q11 and needs expensive treatments and therapy to assist her learning and development. She is an amazing kid with awesome parents in Krista & Jarrod.

Steve, Michael & Bobsy will run the Gold Coast marathon on the 7th July with all proceeds going to Milla

What is 22q11.2 Deletion Syndrome?

22q11.2 Deletion Syndrome is a genetic syndrome. It is the result of a submicroscopic deletion on the long arm of Chromosome 22 in the “q11” region - deletion 22q11.

22q11.2 DS affects approx. 1 in 1000 - 2000 persons making it the second most prevalent genetic syndrome after Down syndrome

22q11.2 DS is the most common genetic syndrome associated with cleft palates

22q11.2 DS is the second most common genetic syndrome associated with congenital heart defects

99% of the 22q11.2 DS population will have a learning difficulty or disability

30% of the 22q11.2 DS population will develop a mental illness. (Nearly half (45%) of the general population (non VCFS/22q11.2DS) in Australia will experience a mental disorder at some stage in their lives.)

22q11.2 DS has more than 180 anomalies associated with it