Mandy's will to live!

Dear kind people, My daughter has a rare brain illness called Idiopathic Intracranial Hypertension (High Pressure inside her head). There has been a myriad of unfortunate events that has led us to here and asking for your compassion and help. Firstly, she went undiagnosed and misdiagnosed for 6 years. She then started to go blind rapidly and underwent emergency brain surgery to insert a VP Shunt into her brain to get the pressure/fluid off her brain and optic nerves asap, to save her life and sight. They weren't able to save her sight completely and is now vision impaired. Mandy then proceeded to deteriorate within 6 months of this VP Shunt being inserted. For 5 years she battled and became bedridden. She saw multiple neurosurgeons to seek help for the excruciating pain (That almost sent her into shock), severe nausea and vomiting, visual disturbances, severe popping, crunching, blocking ears every time she swallowed and because all she could do is lay flat. Getting out of bed and simple tasks like brushing teeth and showering were soooo hard. Despite the severity of her symptoms and multiple MRI's saying her shunt was overdraining and her brain was sagging, not one neurosurgeon would check the pressure inside her head and just said her shunt was working. Thankfully a neurosurgeon eventually took her cries for help seriously and organised and Intracranial Pressure Monitor (ICP) to check the pressure inside Mandy's head. She spent 5 days in ICU with a wire in her head. The pressure was at lowest -25. 8-15 is normal. Her shunt had siphoned all the fluid almost from around her brain resulting in CSF Low Pressure and CSF Hypovolemia. Mandy is very lucky to be alive. She also died on the operating table with the ICP as she had a severe bronchospasm on intubation and now had to wait 2 weeks for them to operate again to hopefully fix whatever was causing her fluid to drop so badly. She was absolutely terrified and now suffers severe anxiety because of the trauma she has endured. Finally, the new neurosurgeon went it and to his surprise found that the valve was visibly broken and leaking and also both of the connecting catheters, one to the brain and one to the stomach weren't even connected to the valve. The neurosurgeon who had put this VP Shunt in Mandys head nearly killed her by recklessly putting a broken shunt in her head and not connecting either of the catheters. What sort of person do you have to be to do this to a 29 year old woman with an illness that can be controlled with the correct treatment. Even remission is a possibility which Mandy prays for everyday. Unfortunately, even though she has had a new valve put in her head and her VP Shunt is now patent the pressure/fluid volume is just not recovering as quickly as we'd like. She will need further surgery but needs to travel interstate as the neurosurgeons here don't specialise in Mandys illness nor do they know how to fix the first neurosurgeons stuff up. She has improved a little but still spends much of her time in bed and doesn't go anywhere except her doctors, scans, blood tests etc. Also, because of the severe dehydration from her head, vomiting everyday and medications her teeth have also fallen apart. She now has a serious infection which is also penicillin resistant and desperately needs full mouth rehabilitation. The neurosurgeons wouldn't let her fix her teeth before they got so bad. My poor daughter had a Macleans smile and now is devastated about her teeth. Its going to cost 80+ thousand to fix and restore her remaining teeth but we can't do anything until the infection has gone but the antibiotics are struggling so it's taking along time and the removal of several teeth to fix. Again, because of the complexity we're not able to get her the help she's needing right now. There's been many complications along the way. She's had seizures, blackouts, balance issues, cognitive and memory issues. It's just all so challenging for us and the medical profession which is why taking her interstate to neurosurgeons who specialise in her illness can help her and do whatever they have to to get her better. Mandy also needs rehabilitation which we can't start yet either. She needs a neurophysiotherapist, neuro occupational therapists, exercise physiologists, dieticians as she immune compromised, the list is endless. Its not easy to get up after being bedridden for so long plus she's just not well enough yet to rehabilitate. She's very positive and determined to beat this and go into remission. Hopefully the pressure/fluid volume doesn't rebound and get too high again. I as her Mother have been broken and traumatised as well watching her suffer so badly. We only have each other and even though I am her full time carer, I can't walk properly at the moment as I need a double hip replacement urgently. I feel terrible that I can't assist my daughter as much as I would like but I soldier on anyways. I have to. My daughter is only 40 and has lost the best years of her life because of the first neurosurgeon. She deserves to get her life back so she can live out her dreams, one being a baby. Yes, it would be very high risk and she will also need IVF as she has a very complicated ovarian/endometriosis/PCOS history as well. She has had 20 plus surgeries on her reproductive system too. She will also need further surgery again sometime soon. I pray she gets her miracle. Thank you in advance for your kind donation and should you require any further information, please don't hesitate to message me. Kind Regards Michelle