My nephew has been diagnosed with Niemann-Pick Type C disease. I had never heard of this disease before May this year. It is a rare, genetic, terminal disease. It has been called childhood Alzheimer’s. I believe hope still exists through research and for research to happen awareness and money is needed. I am raising awareness and hoping to get some donations by trying to ride 1000km in 10 consecutive days from 28/12/18 to 6/1/19. I believe this is a doable but a very tough challenge.