Niemann-Pick Type C’s 1000km in 10 days Challenge

Fundraiser Tina Miller
Funds go to Australian Niemann-Pick Type C Disease Foundation
Event Personal Cycling Challenge
$3,600 raised
100%
GOAL $2,000
54 donations
 
since Oct 2018
 
 
 
 

My nephew has been diagnosed with Niemann-Pick Type C disease. I had never heard of this disease before May this year. It is a rare, genetic, terminal disease. It has been called childhood Alzheimer’s. I believe hope still exists through research and for research to happen awareness and money is needed. I am raising awareness and hoping to get some donations by trying to ride 1000km in 10 consecutive days from 28/12/18 to 6/1/19. I believe this is a doable but a very tough challenge.

26
updates

06
Jan
Photo with Tommy
06
Jan
Challenge Day 10 - 52.2 km
1000km in 10 days completed.
05
Jan
Some photos
05
Jan
Challenge Day 9 - 135.9km
What a fun day. Lots of company. Thanks John, Sean, Rob and Shaun for riding with me today. Less than 50km to go.
04
Jan
Challenge Day 8 - 74.2km
So 2 days to go. 185km to go. Woo Hoo and I have company on the ride for the last 2 days.
03
Jan
Challenge Day 7 - 69.7km
A flat tyre this morning. A big thank you to the Good Samaritan who helped me change the tyre. I did want to go again after work but the tyre is flat again. Taking it to a friend now to help change it.
02
Jan
Challenge Day 6 - 71.7km
Only had time for a ride before work today. The next two days will likely be smaller kilometre days too as I’m working then too.
01
Jan
Challenge Day 5 - 125.3km
This pm I’ve climbed a little mountain (without the bike) to see the sunset on the first day of 2019. Mountains and sunsets to me are everyday miracles. I am hoping that a miracle cure is found for NPCD.
I’ve done 600km in 5 days - I don’t know how.
Anyway dream and believe and believe the dream.
Happy New Year.
31
Dec
Challenge Day 4 - 113.6 km
Back to riding solo today. I did a ride before work and another after work. Happy new year.
30
Dec
Challenge Day 3 - 130.8km
Thanks Sean and Jane for keeping me company.
29
Dec
Challenge Day 2 - 124.7km. Thanks Sean and John for keeping me company.
28
Dec
Challenge Day 1 - 106 km. 2 rides done today to get the kilometres. One before work and one at lunch time.

It is so good to have a jersey with sponsors for this challenge.

Thanks for your support the Ploughman (www.ploughmanbar.com.au). My favourite place to have a vino or beer!!

Also thanks for your support Atrio Apartments (www.atrioapartments.com.au) and The Miro (www.themiro.com.au) who provide great value accommodation in the Valley from $99 per night! Call (07) 3634 6900 and ask for 10% off!
17
Dec
I have a jersey for the ride now. Since my last update I’ve done another 3 big rides. Wishing everyone a Merry Christmas. I’ll be positing everyday throughout the Challenge with those kilometres. Merry christmas. Tina.
29
Nov
105 on Tuesday then 92 km yesterday. Yesterday’s ride was cut short due to rain and hail.
21
Nov
Windy and hot ride. Happy to get another 100km done
20
Nov
Yesterday I had a little ride at the end of the day. I’m always juggling these rides between work, kids and life. I was lucky to sneak in this little ride.
14
Nov
Life is a marathon not a sprint (as my speed suggests)
So I can do 200km+ in 2 consecutive days it’s another micro goal achieved.
From the bottom of my heart thank you so far for all the generous donations alongside your words of love, hope, encouragement and safety.
13
Nov
Lovely ride today
11
Nov
Today’s ride was the Brisbane river loop. Top ride.
11
Nov
Yesterday’s ride. Beautiful afternoon for a ride
07
Nov
A very, very windy ride.
05
Nov
A very hot 100km ride today. This weeks goal is to back up and do another 100km in 2 days time. Then next weeks goal is to do 100km 2 days in a row. My rides can all be seen on strava.
30
Oct
My second 100km + Ride since training for this challenge was slightly longer and stronger. Very happy that my speed was 1.1km/hr faster than last Wednesday.
Thanks for your support everyone.
28
Oct
Today’s ride was exploring some different paths and roads. Gentle Sunday pm ride.
27
Oct
Today’s ride was just about enjoying some time outdoors after a busy morning at work.
24
Oct
Big goals are the end result of lots of micro goals. Today’s goal was to ride 100km in between school drop off and pick up. Done. ??
It’s been 18 months since I’ve done a 100km + ride. So it had to be done ASAP.
Thank you everyone for your support.
Follow this campaign for updates
$3,600 raised
100%
GOAL $2,000
54 donations
 
since Oct 2018
 
Fundraising for
Australian Niemann-Pick Type C Disease Foundation
Australian NPC Disease Foundation is trying to raise awareness and funds for research into a treatment/cure for this rare terminal genetic disease that is called Niemann-Pick Type C Disease, which has a number of symptoms and has also been referred to as Childhood Alzheimer's.
About fundraiser
Tina Miller
Alderley QLD
 
 

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