My nephew has been diagnosed with Niemann-Pick Type C disease. I had never heard of this disease before May this year. It is a rare, genetic, terminal disease. It has been called childhood Alzheimer’s. I believe hope still exists through research and for research to happen awareness and money is needed. I am raising awareness and hoping to get some donations by trying to ride 1000km in 10 consecutive days from 28/12/18 to 6/1/19. I believe this is a doable but a very tough challenge.
Australian NPC Disease Foundation is trying to raise awareness and funds for research into a treatment/cure for this rare terminal genetic disease that is called Niemann-Pick Type C Disease, which has a number of symptoms and has also been referred to as Childhood Alzheimer's.
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About Fundraiser
Tina Miller
Alderley, QLD
Sat, 12 Jan 2019
Tom Edwards
$ 100
Wow! What an amazing challenge to undertake. Inspiring
Fri, 11 Jan 2019
Tina Miller
$ 40
Thanks everyone for your support and generosity.
Wed, 9 Jan 2019
Violaine Brossard
$ 50
Mon, 7 Jan 2019
Alexis Stockwell
$ 100
Proud of you!
Sun, 6 Jan 2019
Michelle Jones
$ 40
Well done Tina,
Amazing effort!
All the best to you and your family.
Michelle
Sun, 6 Jan 2019
Victoria Brown
$ 40
You're awesome Tina ... Gorgeous inside and out and you just nailed this very personal challenge! Inspirational! Love The Browns (Victoria, Alistair and the girls) Xo
Sun, 6 Jan 2019
Anonymous
$ 20
Sun, 6 Jan 2019
Vanessa Rich
$ 50
Amazing effort for a cause close to your heart, Tina. I admire you a lot! Ness
Sun, 6 Jan 2019
Sandra Williams
$ 100
Awesome Effort Tina!!!
Sun, 6 Jan 2019
John Pickering
$ 100
Good work on completing the 1000km’s.
Well done - a massive challenge.
Australian NPC Disease Foundation is trying to raise awareness and funds for research into a treatment/cure for this rare terminal genetic disease that is called Niemann-Pick Type C Disease, which has a number of symptoms and has also been referred to as Childhood Alzheimer's.
Wow! What an amazing challenge to undertake. Inspiring