Niemann-Pick Type C’s 1000km in 10 days Challenge

Fundraiser Tina Miller
Funds go to Australian Niemann-Pick Type C Disease Foundation
Event Personal Cycling Challenge
$1,850 raised
93%
GOAL $2,000
26 donations
 
since Oct 2018
 
 
 
 

My nephew has been diagnosed with Niemann-Pick Type C disease. I had never heard of this disease before May this year. It is a rare, genetic, terminal disease. It has been called childhood Alzheimer’s. I believe hope still exists through research and for research to happen awareness and money is needed. I am raising awareness and hoping to get some donations by trying to ride 1000km in 10 consecutive days from 28/12/18 to 6/1/19. I believe this is a doable but a very tough challenge.

9
updates

13
Nov
Lovely ride today
11
Nov
Today’s ride was the Brisbane river loop. Top ride.
11
Nov
Yesterday’s ride. Beautiful afternoon for a ride
07
Nov
A very, very windy ride.
05
Nov
A very hot 100km ride today. This weeks goal is to back up and do another 100km in 2 days time. Then next weeks goal is to do 100km 2 days in a row. My rides can all be seen on strava.
30
Oct
My second 100km + Ride since training for this challenge was slightly longer and stronger. Very happy that my speed was 1.1km/hr faster than last Wednesday.
Thanks for your support everyone.
28
Oct
Today’s ride was exploring some different paths and roads. Gentle Sunday pm ride.
27
Oct
Today’s ride was just about enjoying some time outdoors after a busy morning at work.
24
Oct
Big goals are the end result of lots of micro goals. Today’s goal was to ride 100km in between school drop off and pick up. Done. ??
It’s been 18 months since I’ve done a 100km + ride. So it had to be done ASAP.
Thank you everyone for your support.
Follow this campaign for updates
$1,850 raised
93%
GOAL $2,000
26 donations
 
since Oct 2018
 
Fundraising for
Australian Niemann-Pick Type C Disease Foundation
Australian NPC Disease Foundation is trying to raise awareness and funds for research into a treatment/cure for this rare terminal genetic disease that is called Niemann-Pick Type C Disease, which has a number of symptoms and has also been referred to as Childhood Alzheimer's.
About fundraiser
Tina Miller
Alderley QLD
 
 

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