Kye's Fight For Sight

$19,168 raised

From 213 Donations
TARGET $30,000

Please support this cause

AUD
$
Raising funds for: Kye Portelli
Imagine being told at the age of just 15 you will lose your ability to see. xxx A humbling thought isn't it? xxx That is unfortunately what Kye, our brave young man has been told and the reality of living in between the blind and sighted world is both a scary and frustrating one of equal measure. Kye was recently diagnosed with the genetically transmitted disease, known as Retina Pigmentosa (or RP). Coming to terms with this sight loss diagnosis will no doubt be a challenge no young person should have to face. We would like to help take a financial burden off Kye and his family so this page has been created to help raise funds for the ongoing medical costs and to allow Kye and his Mum to travel to the States for further medical advice and to also fulfill Kye's travelling dreams whilst he is still able to enjoy the sights that our amazing planet has to offer. xxx Not only will this allow them access to advanced medical advice and treatment, it will also allow Kye to take a permanent picture of as many wonders of the world as possible, so that he can always treasure those visual memories forever. xxx ABOUT RETINA PIGMENTOSA Retinitis Pigmentosa is a very rare eye condition. The genetically transmitted disease, which is usually diagnosed in teenagers, affects the light-sensitive nerve tissue lining the back of the eyes. For more detailed information about this condition you can read more at this site. https://nei.nih.gov/health/pigmentosa/pigmentosa_facts
Update
04 Oct 2018
S E N D I N G L O V E Please join us in sending love to Kye ** A message from Kye's Dad Sheldon ** "Tomorrow Kye undergoes emergency surgery for the progressive retinal detachment in his right eye which is an added complication separate to his RP Condition. He will need Schleral buckling surgery which is a procedure used to repair retinal detachment. In this surgery, a surgeon attaches a piece of silicone or a sponge on to the white of his eye at the spot of the retinal tear. The buckle is designed to repair retinal detachment by pushing the schlera toward the retinal tear or break. I know many wonderful and generous people are actively involved and I would like to thank all of you for helping make Kye's journey a more loving caring and fulfilling one.. The Portelli Family are so grateful and appreciative for your efforts and would like to thank you from the bottom of our hearts" Sheldon Portelli ** Kye needs all of our love and prayers and we want him to know how loved and how supported he is on this journey ahead. With Love and Gratitude Always TEAM KYE
Update
26 Sep 2018
X O Good Morning Team Kye X O A message from the Portelli Family "We would like to thank each and everyone of you for your love, support and generosity. We are completely overwhelmed. We have had some ups and downs as a family but nothing prepared us for the news we received about our youngest, Kye. Kye had complained that he felt like something was in his eye and was causing some distortion in his vision. A routine eye examination landed us at the Children's Hosptial and after 4 hours of running tests we were told it wasn't good news. "your son has a rare genetic degenerative eye disease which leads to blindness. There is no cure" The Opthalmologist slipped me a piece of paper with two words "Retinitis Pigmentose". I couldn't breathe. How could that be? He is only 15! That was four months ago. Kye recently went to see one of the top Opthalmologist's and unfortunately we had a setback. It was discovered that one of Kye's eyes has retinal detachment requiring urgent surgery, which is scheduled over these school holidays. We know that you will be thinking of our boy and we are looking forward to getting back on track after Kye's surgery to find alternative therapies to slow down the progression of his RP. We will keep you all posted" With much love and gratitude The Portelli's x o x
DONATIONS213
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Charlotte Anderson
Tue, 21 Jan 2020
$ 30
$ 30
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Newman College
Fri, 4 Jan 2019
$ 688
Dance Off Newman College funds raised
Dance Off Newman College funds raised
$ 688
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Nav Dhaliwal
Mon, 31 Dec 2018
$ 200
$ 200
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Catherine Muhic
Sat, 24 Nov 2018
$ 150
Sending all our love to Kye and family Love from Auntie Cath, Uncle Trevor, Damon & Lisa xxxx
Sending all our love to Kye and family Love from Auntie Cath, Uncle Trevor, Damon & Lisa xxxx
$ 150
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Marnie Bell
Thu, 22 Nov 2018
$ 100
Sending loads of love to you all. Gav, Marnie, Josh, Mitch & Ruby Bell xxoo
Sending loads of love to you all. Gav, Marnie, Josh, Mitch & Ruby Bell xxoo
$ 100
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Holland family
Thu, 8 Nov 2018
$ 200
$ 200
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Anonymous
Thu, 8 Nov 2018
$ 265
$ 265
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Anonymous
Fri, 2 Nov 2018
$ 200
$ 200
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Strack Family
Wed, 31 Oct 2018
$ 100
Wishing Kye all the best - Ali and the Strack fam
Wishing Kye all the best - Ali and the Strack fam
$ 100
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Vicki Buchanan
Wed, 31 Oct 2018
$ 100
$ 100
RAISING FUNDS FOR
Kye PortelliKye has been diagnosed with Retina Pigmentosa, a very rare eye condition that is genetically transmitted. This page has been created to help raise funds to allow Kye and his Mum to travel to the USA for further medical advice and to allow Kye to enjoy some sights of the world whilst he is still able
FUNDS BANKED TO:
Kye Sheldon Portelli

Campaign Creator
TKP
Team Kye Portelli
SCARBOROUGH, WA
Created Sep 2018

$19,168 raised

From 213 Donations
TARGET $30,000

Please support this cause

AUD
$
RAISING FUNDS FOR
Kye PortelliKye has been diagnosed with Retina Pigmentosa, a very rare eye condition that is genetically transmitted. This page has been created to help raise funds to allow Kye and his Mum to travel to the USA for further medical advice and to allow Kye to enjoy some sights of the world whilst he is still able
FUNDS BANKED TO:
Kye Sheldon Portelli
Campaign Creator
TKP
Team Kye Portelli
SCARBOROUGH, WA
Created Sep 2018