Fibrodysplasia Ossificans Progressiva or FOP for short, is an ultra rare genetic condition for which there is currently no cure. It is one of the rarest, most disabling genetic conditions known to medicine, causing bone to form in muscles and other soft tissue. Whenever extra bone is formed across joints it permanently restricts movement. Our connection to this community is through our brother/son - Ollie. Diagnosed at just 18 months of age, Ollie has been living with this debilitating, progressive condition for over 2 decades. We aim to raise much needed funds to be put towards research into finding a cure for FOP. Any and all support received is very much appreciated - no donation is too small!