I am trying to raise funds and bring awareness to those who are unfamiliar with a terrible debilitating disease called Huntington’s Disease, a condition in which nerve cells in the brain break down over time. My mother has Huntington’s Disease and this was passed onto her and her siblings from her mother who passed away from the disease at the age of 56. My mum was tested for the gene at an early age to discover she infact did carry the gene and from about 40 years of age, her symptoms slowly starter to appear. To see my mum at the age of 53, struggling with this disease that seems to now be rapidly taking her quality of life away, is the most heartbreaking thing my family have to face. I wish my beautiful mother was not sick from this cruel disease, I wish that nobody was, and I also hope that this is not something that has also been passed down to me and my brother because to have seen my grandmother suffer from Huntington’s and watch my mum support her mother through it all, to now watching my mother go through it all and me having to step up and be the best daughter that I can be to love and support her, is the hardest thing on this earth but I will do anything I can for this amazing and beautiful woman that deserves the absolute world. I have never brought this to light much but it is affecting my family more and more everyday and I would love to make my mum proud and raise funds and awareness and donate the funds to Huntington’s Victoria to help with further research in hopefully one day finding a cure.
Huntington's Victoria assists to improve the quality of life of all people touched by Huntington's Disease in Victoria by connecting families to the vital support and services they need, whilst supporting people affected by Huntington's Disease to live meaningful and hopeful lives as valued members
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About Fundraiser
Amanda Alicata
Keilor Downs, VIC
Thu, 10 May 2018
Sonia Bentivoglio
$ 20
Hope they find a cure. Xx
Sun, 8 Apr 2018
Glenda Vadnjal
$ 20
Fri, 30 Mar 2018
Michelle Alicata
$ 50
Thu, 29 Mar 2018
Helen Testa
$ 50
Hoping my beautiful cousin does not suffer anymore.
Wed, 28 Mar 2018
Josephine Cassar
$ 50
Praying that a cure is found. We love you Helen and think of you every day. xxxx
Wed, 28 Mar 2018
Mary Borg
$ 20
May the Lord grant you strength and courage to keep looking after your beautiful mum.
Your nannu Joe, would be so proud of you.
Wed, 28 Mar 2018
Ngoc Tran
$ 20
Wed, 28 Mar 2018
Anonymous
$ 30
Wed, 28 Mar 2018
Darren Schiavello
$ 20
Wed, 28 Mar 2018
Sharon Cassar
$ 25
You're mum is and always has been VERY proud of you. May the donations you get be a blessing to those in need of a cure and bless those medical petitioners working a cure. Great eork Amanda xx
Huntington's Victoria assists to improve the quality of life of all people touched by Huntington's Disease in Victoria by connecting families to the vital support and services they need, whilst supporting people affected by Huntington's Disease to live meaningful and hopeful lives as valued members
Hope they find a cure. Xx