Aaron & Kirsty McConnell lost their little girl, Lily Rose McConnell to Spinal Muscular Atrophy Type 1 on March 21, 2017 when she was just 16 months old. SMA is a genetic neurological condition which robs children of their ability to move, eat, breathe and sleep properly. A condition similar to muscular dystrophy, there is no cure but for the very first time, treatment is now becoming available to sufferers of this terminal disease. Aaron will be running the Melbourne Marathon in memory & honour of Lily, in the hope to raise funds for ongoing support and awareness that SMA Australia provides.
Amazung effort Aaron.