Rob and Simone are a beautiful family with a large community of friends.
They have an 8 year old boy Beau, who has been diagnosed with Leukodystrophy.
This cause is to raise money to assist Rob and Simone with associated costs for Beau.
It is not a Tax deduction but a great way to support and just feel really good.
We have a team running the New York Marathon 2017 and will be raising money to help out. Please don't wait until November if you wish to support. The time is now.
Details:
http://ulf.org/adrenoleukodystrophy
It is a degenerative neurological condition without a cure and with very few treatment options. Once the symptoms present, the degeneration can be quite aggressive. They only have a short amount of time left with him.
Please exercise discretion if you know or make contact with this family as Beau is not aware of this.
Thank you in advance for your support
#NYM2017