Rare with no cure. Neuro Myelitis Optica (NMO)

$5,031 raised

From 59 Donations
TARGET $5,000

Please support this cause

AUD
$
I am only one of about 200 other Aussies diagnosed with Neuro Myelitis Optica (NMO),While I may look healthy on the outside, this is not the case on the inside. Having an "invisible" disease makes it hard for others to understand how serious NMO can be.Before NMO, I was a passionate teacher and a volunteer firefighter. NMO took that away from me. Becoming an advocate for NMO, providing support to other NMO sufferers and promoting awareness is now a huge passion of mine. NMO once thought to be MS, is now recognised as a disease of it's own. Sometimes aggressive & sudden in its onset, all the damage occurs during an attack (including paralysis or sudden blindness) and so it's vital that people are diagnosed swiftly and the medical profession recognises the importance of early medical intervention. Many sufferers live with visual and mobility problems, experiencing excruciating pain as a result of lesions/scarring that permanently damage the optic nerves and spinal cord. Muscle spasms, cramps, spasticity, speech difficulties, chronic hiccups and vomiting, limb weakness,respiratory weakness &/or failure, bowel & bladder incontinence, as well as burning and stabbing pains are all part of the NMO journey. Some may even die as a result of NMO. Immunosuppressants help to prevent attacks for some, not all and it isn't a cure! My goals are simple. To raise awareness of NMO and it's difference to MS. To meet & support other people suffering from NMO all around Australia. To raise funds for NMO research via the "Kiss Goodbye To MS" charitable campaign but all funds will go specifally toward NMO research. What am I doing? I am travelling SOLO around Australia in my off rd caravan, over 4 months (challenging even without NMO!) raising awareness / fundraising whilst visiting people with NMO who have varying degrees of disability.I need to do it NOW, as the disease is so unpredictable, every hour, every day. I am grateful to friends & family for their unwavering love & support and to the strangers I have yet to meet on my journey for "NMO. Rare With No Cure."
DONATIONS59
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maria lees
Tue, 3 Oct 2017
$ 30
You're an inspiration Deb, good on you girl!
You're an inspiration Deb, good on you girl!
$ 30
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Carol Stevens
Mon, 2 Oct 2017
$ 60
To a great friend with an unbelievable gusty life
To a great friend with an unbelievable gusty life
$ 60
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Cash donations
Mon, 2 Oct 2017
$ 400
Cash donations thankfully received from Judy Peake, Margaret Fenton, Michelle Andrews and Eastern Camping & 4WD Social Meetup.
Cash donations thankfully received from Judy Peake, Margaret Fenton, Michelle Andrews and Eastern Camping & 4WD Social Meetup.
$ 400
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Sharon Fox
Mon, 2 Oct 2017
$ 100
You are a strong, inspirational woman. I'm so pleased for you for your achievement, and because you are surrounded by the love of your family, friends and darling Matt. ❤❤❤
You are a strong, inspirational woman. I'm so pleased for you for your achievement, and because you are surrounded by the love of your family, friends and darling Matt. ❤❤❤
$ 100
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Simone Algie
Tue, 26 Sep 2017
$ 10
Good on you Deb!
Good on you Deb!
$ 10
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Graham Sexton
Tue, 26 Sep 2017
$ 20
Thanks Deb for being an inspiration to us all
Thanks Deb for being an inspiration to us all
$ 20
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Donna Stewart
Tue, 26 Sep 2017
$ 50
Deb what a fantastic effort! very happy to support you, your journey has been inspiring, well done xxx
Deb what a fantastic effort! very happy to support you, your journey has been inspiring, well done xxx
$ 50
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Laurel Sinclair
Tue, 26 Sep 2017
$ 40
You are an inspiration Debbie. xx
You are an inspiration Debbie. xx
$ 40
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Jo-anne Rowe
Wed, 23 Aug 2017
$ 40
Love
Love
$ 40
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Ngulla Murrandah
Sat, 19 Aug 2017
$ 14
Go Debbie, You are a legend! So close to your goal.... Here is another contribution under our slogan of '$1 a day each day you are away' xx
Go Debbie, You are a legend! So close to your goal.... Here is another contribution under our slogan of '$1 a day each day you are away' xx
$ 14
Raising funds for
charity-logo
MS Research Australia - Kiss Goodbye to MS_CLOSEDOur Mission is to accelerate Australian MS research toward the prevention, better treatments and a cure for MS.We will achieve this by working in partnership with relevant medical research institutes and scientists around Australia, encouraging collaborations and focus on our strengths in this research. MS Research Australia is ultimately working towards "Freedom from MS".

About fundraiser
DL
Deborah Leticq-Cromb
Olinda, VIC
Created Mar 2017

$5,031 raised

From 59 Donations
TARGET $5,000

Please support this cause

AUD
$
Raising funds for
charity-logo
MS Research Australia - Kiss Goodbye to MS_CLOSEDOur Mission is to accelerate Australian MS research toward the prevention, better treatments and a cure for MS.We will achieve this by working in partnership with relevant medical research institutes and scientists around Australia, encouraging collaborations and focus on our strengths in this research. MS Research Australia is ultimately working towards "Freedom from MS".
About fundraiser
DL
Deborah Leticq-Cromb
Olinda, VIC
Created Mar 2017