Epidermolysis Bullosa (EB) is a rare skin disease where the skin blisters and peels at the slightest touch or friction. It is extremely painful it has been said that the blisters can cause the same about of pain as third degree burns.
It is a result of a defect in the anchoring between the epidermis and dermis, resulting in water raising to the surface causing blisters.
It is known as "the worst disease you have never heard of".
I learned about this condition through my friend Jacqui Brown, whose husband Brendan and two young sons Jayden and Jentzen, live with this condition. Their family are a pilar of faith and hope, and I am so inspired by their courage.
There is no cure for EB, so I want to help be a part of making a difference. I will be chopping off 30cms of my hair and donating it to charity while raising funds for EB.
Please join me on this journey, together we can make a difference in the lives of those who are affected by this condition.