Epidermolysis Bullosa (EB) is a rare skin disease where the skin blisters and peels at the slightest touch or friction. It is extremely painful it has been said that the blisters can cause the same about of pain as third degree burns. It is a result of a defect in the anchoring between the epidermis and dermis, resulting in water raising to the surface causing blisters.
It is known as "the worst disease you have never heard of".
I learned about this condition through my friend Jacqui Brown, whose husband Brendan and two young sons Jayden and Jentzen, live with this condition. Their family are a pilar of faith and hope, and I am so inspired by their courage.
There is no cure for EB, so I want to help be a part of making a difference. I will be chopping off 30cms of my hair and donating it to charity while raising funds for EB.
Please join me on this journey, together we can make a difference in the lives of those who are affected by this condition.
DEBRA Australia offers advocacy, financial support, emotional support and networking opportunities to families who are living with Epidermolysis Bullosa (EB) a rare genetic condition which causes the skin to blister at the slightest friction or even spontaneously.
RC
About Fundraiser
Rochelle Currie
Cranbourne East, VIC
Wed, 4 Jan 2017
Anonymous
$ 100
Thanks Rochelle you are amazing. On behalf of EB community... thank you for being so generous.
Wed, 28 Dec 2016
Mary-Ann Syjongtian
$ 100
So proud of you lovely!! Xxo
Wed, 28 Dec 2016
Ben Currie
$ 100
Love you
Tue, 27 Dec 2016
Shan Weerasiri
$ 20
What a lovely thing to do with your long locks. You'll give it away and look fab too
Mon, 26 Dec 2016
Laura Goode
$ 30
Great job rochelle! Hope you reach your target. Xx
Mon, 26 Dec 2016
Monique Barnett
$ 20
Good work Rochelle!! Can't wait to see your new hair on Wed xx
DEBRA Australia offers advocacy, financial support, emotional support and networking opportunities to families who are living with Epidermolysis Bullosa (EB) a rare genetic condition which causes the skin to blister at the slightest friction or even spontaneously.
Thanks Rochelle you are amazing. On behalf of EB community... thank you for being so generous.