The month of October is 'Rett Syndrome Awareness Month.' Everyday for the month of October, I am challenging myself to walk a minimum of 5k a day. I will also be selecting 1 day in October to go speechless for 24hrs and only communicate with simple terms through cards. I am choosing to raise funds for the Rett Syndrome Association of Australia in honor of my beloved sister, Annelise- who lives with Rett Syndrome.
Children who have Rett Syndrome often lose that freedom of mobility, some can walk independently or with assistance, some lose their ability to walk in time, some never walk again but others regain their ability to walk. Annelise only started to walk when she was 3 years old. At age 8 Annelise lost her ability to walk independently due to the progression of scoliosis a common symptom of Rett Syndrome. in the past 3 years Annelise has endured two major spinal surgeries and with whole heap of physio and pure determination, Annelise is regaining her ability to walk. We are hopeful that one day Annelise will once again have the freedom to walk independently.