In 2014 my wife and I founded TSC Heroes which has raised over $100,000 to support people living with Tuberous Sclerosis Complex a rare and complex disease that effects every major organ in the body. We were inspired on this journey by our beautiful daughter Zarah who battles the conditions of this disease everyday. Although it’s very difficult for us and we have some dark days we have the financial and emotional help to cope the best we can...this is not the reality for many families living with TSC. It was for this reason TSC Heroes was born to raise much needed awareness and funds to help families living with this complex condition. TSC Like many rare diseases receives no government funding so any support you can large or small makes a huge difference to Australian families living with TSC.