Aria's Fight with Leukodystrophy VWM Disease

$15,505 raised

TARGET $20,000

Please support this cause

$
AUD

About

Aria’s life started off by achieving normal milestones as you would expect in a baby. She was laughing, sitting and had good leg and arm strength. At around 9 months old we noticed that Aria had not rolled or sat up in a while and she was losing the ability to hold her head up.
An MRI was conducted and the results changed our lives forever. Aria had abnormal white matter in her brain also known as Leukodystrophy a group of rare, progressive, metabolic, genetic disease that affect the brain, spinal cord and nerves. Aria has recently been diagnosed with Vanishing White Matter Disease (VWMD), a form of Leukodystrophy. It is so rare that there is very little research into the disease and currently, no cure.

Research holds the key
The Illawarra Health and Medical Research Institute (IHMRI) in Wollongong, NSW, is the only institute in Australia researching this rare disease. Help fund this research by donating to IHMRI this year so that other children like Aria, have a hope of better treatment for VWMD. Thank you, from Aria's family.

I'm raising funds for

charity-logo

Illawarra Health and Medical Research Institute

The Illawarra Health and Medical Research Institute (IHMRI) is a not-for-profit charity in the Illawarra-Shoalhaven region of New South Wales, Australia. We bring scientists, doctors and health professionals together to solve our greatest health challenges through research.

About Fundraiser

Bec Santalucia

HILLSIDE VIC



Tue, 29 Jun 2021

Carole Dovell

$20
Mon, 17 May 2021

Shenelle Toshack

$25
Fri, 30 Apr 2021

Saniya Salim

$100

I sincerely hope and pray that this child and many other children in such diseases be fully cured and healed and lead a prosperous healthy life.

Mon, 26 Apr 2021

Mick O’ Callaghan

$50
Mon, 26 Apr 2021

Amanda Canzurlo

$20
Mon, 26 Apr 2021

Lauren & Bryn McKay

$30
Mon, 26 Apr 2021

Jason Paul Gardiner

$100
Mon, 26 Apr 2021

Ann Watkins

$25
Mon, 26 Apr 2021

peter wheatley

$50

sending you our love give her a big hugg from us

Mon, 26 Apr 2021

James Wade

$150

I have twins and feel so lucky that last weekend both turned 30. I hope you enjoy the same moment

SINCE  Dec 2020

78 

Donations

$15,505 raised

TARGET $20,000

Please support this cause

$
AUD

I'm raising funds for

charity-logo

Illawarra Health and Medical Research Institute

The Illawarra Health and Medical Research Institute (IHMRI) is a not-for-profit charity in the Illawarra-Shoalhaven region of New South Wales, Australia. We bring scientists, doctors and health professionals together to solve our greatest health challenges through research.

About Fundraiser

Bec Santalucia

HILLSIDE VIC

SINCE  Dec 2020

78 

Donations