Hi to all supporters and followers of Alicia's journey. Thanks to your generous donations, Alicia has made it safely home to Australia. She was repatriated with a nurse accompaniment from Mexico, touching down in Brisbane and being admitted immediately at Gold Coast University Hospital on November 29. Unfortunately, life seems to be kicking Alicia whilst she's down, continuing to deliver more and more bad news, even upon her arrival to her home country.
MEDICAL UPDATE:
LEG:
Xrays have revealed that the femur underneath the hip had started to heal in the wrong direction, and required revision surgery, rebreaking and setting the leg, undoing all the work Alicia had done over the months of physio in Mexico. It got more complicated from there, however, as Alicia's bones were revealed to be a very complex and rare case, which needed more than a week of planning by the surgical team. They called around to other doctors around the country who had operated on a similar injury, ordered in about a million dollars of parts, including diamond-tipped drill bits to perforate the bone. They entered Alicia in for surgery with many options, and thankfully the plan A, to drill holes down the centre of the femur and create an internal canal in which to insert a metal rod, worked out. However, they could only insert a 7mm paediatric sized rod, which means that Alicia cannot weight bear like other patients with this injury until her bones have fully healed. This means that Alicia will be wheelchair-bound for several weeks to months.
ANAEMIA:
Due to the lack of red blood cells, however, her bones will take much longer to heal. Her haemoglobin levels are dangerously low and they are resulting in low blood pressure, high heart rate and drowsiness. Multiple blood transfusions have proven little help so far with her HB staying at 72.
ARM:
To add insult to injury, during the second surgery on Alicia's humerus, the radial nerve needed to be moved, and this has resulted in radial palsy: a paralysis of the right wrist and fingers that is causing her excruciating nerve pain and doctors cannot say when or if this will recover. This prevents Alicia not only from using crutches to walk, but she cannot write, dress herself, prepare meals or even push herself in a wheelchair.
WHERE TO NOW?
All of these factors have combined to an unfortunate situation for Alicia: The Queensland Health system is designed to get patients moving independently and living back out in the community as quickly as possible to free up the bed., but Alicia has found herself now stuck in hospital with no appropriate accommodation.
Her mother has passed on, her grandmother is living in a retirement home, her sister lives in an unaccessible house and has also gone overseas for the Christmas period, and her brother is also preparing to move away, currently living with others.
As she has been restricted from weight-bearing on both her leg and her arm until the bones have healed, and her bones take longer than normal to heal, Alicia is not physically eligible to be transferred to a hospital in-patient rehabilitation facility. An assisted living respite facility is only available for people aged 65 and over. The only option for her outside of the hospital is a private, modified house, which is out of the price range of someone on unemployment benefits.
Alicia is not eligible for the NDIS funding (Disability allowance, free services and discounts), because although her bone condition will affect her for life and will cause her to have future fractures very easily, the current injury she has does not meet the criteria for NDIS, as lasting 2 years or more.
Alicia has fallen through a crack in the system due to her age and her very rare bone condition that restricts her from rehab. She now is being moved from room to room as they have space, and may possibly even be transferred to a different hospital as there is no place for a long term patient on an acute ward.
Despite this, Alicia keeps her spirits up, staying busy and doing the few exercises she can, learning to be as independent as possible from within the confines of the hospital. She feels safe within her own country, albeit lonely and missing her partner in Mexico very much.
WHAT CAN YOU DO?
Christmas is coming up, and Alicia will be spending it and New Year's in a hospital room. You can make her day a little brighter by throwing a couple more dollars her way to her campaign. Alicia has told me that she's been told to buy herself a different, lighter self-propelled wheelchair so that she can more independently push herself around with her one arm and get out of her room without relying on the few visitors she has. This is valued at $495.
If you can't spare the extra pennies, drop Alicia a line instead or leave her a Christmas message here in the comments.
A WORD FROM ALICIA
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Hey guys, thanks for all your amazing love and words of encouragement to get through the most difficult time in my life. I have been in pain, felt scared, unsure, frustrated, defeated, disappointed, angry and depressed, but I have never ONCE felt alone in this because of YOU!
For those whom I haven't spoken with yet, I know how you must feel when you see my updates, because I would feel exactly the same if you were hurt over there and I couldn't come to see you. I know you all feel helpless like you can't do anything and that everything's so shit that there is not much that can be said.
I figure that the best way around this is to just tell you what I need.
If you want to show you care but don't know how, just reach out and have a chat. I just need to feel normal again. The joy for life and freedom I had in my Old life before travelling, focusing on good friendships and only those people who make my soul smile. I want to have lots of funny conversations, reminisce on past memories and laugh a lot, with a little gossip thrown in. If you want to know what to say, talk to me about yourself and what's going on with you. Despite what is going on with me, I recognise that there are two people in this friendship and the other person has a life too.
Tell me about your life, make me forget myself for a minute. Tell me a joke, a funny story about your week, send me a funny meme. It can be small, anything to know I've crossed your mind.
And if I'm sad or angry, you don't need to feel like you have to say anything, you don't need a response. Sometimes just being there whilst I shout or cry is all I need then I can let it out and know I'm in a safe space where someone who cares about me is listening.
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We will be closing the campaign after Christmas so this is your last chance to contribute.
The money raised is going towards accommodation after Alicia is out of hospital.