mycause - Crowdfunding & Online Fundraising Site in Australia

500,000 Steps for Scleroderma

$11,245 raised

TARGET $15,000

Please support this cause

$
AU

About

Imagine waking up one day to find that your skin has hardened. Your skin growing extra layer upon layer to the point where you are unable to bend or move any of your limbs. This is the reality that my mum is facing. Slowly her body is turning to stone.

Almost 2 years ago she was diagnosed with a debilitating disease called scleroderma. It causes hardening of the skin and affects the internal organs like the heart, liver and kidneys. It is a life-threatening disease. There is no cure.

You have probably never heard of scleroderma. It affects approximately 5000 people nationwide and while research is ongoing there is so much about this disease that we know nothing about.
We are hoping to change that.

Last year we started a legacy to raise awareness and money for ongoing research to hopefully find a cure, we put on our walking shoes and walked over 470km (500,000 steps) from Narellan to Ariah Park (a little town in the Riverina) raising over $30,000.

This year we have raised the bar, we are going to walk further than before over 500km in 2 weeks from Port Macquarie to Narellan from 16th June 2018 – 29th June 2018. It will be an epic journey following the coastline, we will be climbing hills like we have never climbed before. It’s going to be an incredibly difficult walk but we are up for the challenge.

To put that into perspective that is almost 40kms every day for 14 days. The equivalent of walking a marathon every day for two weeks. No easy feat. But it is nothing compared to what people living with Scleroderma go through every single day.

We are raising money to provide support for those with Scleroderma, and to help Scleroderma NSW with their research efforts. Help us raise awareness and find a cure for Scleroderma by supporting our journey!

I'm raising Fundraising For

charity-logo

The Scleroderma Association of NSW

The Scleroderma Association of NSW Inc. is a charitable organisation whose aim is to increase support and awareness for Scleroderma sufferers in the NSW Community.

About Fundraiser

Tamara Kennedy

Pemulwuy NSW



Fri, 14 Sep 2018

Janet Prince

$100

Hoping for a cure for this terrible disease

Thu, 30 Aug 2018

Dimitri Bantli

$20

Good stuff kenno!! You need better boots though ;)

Wed, 25 Jul 2018

Anonymous

$1350
Wed, 25 Jul 2018

Anonymous

$1200
Mon, 23 Jul 2018

Brent McCullough

$50

Awesome effort mate...hope the feet have recovered!

Fri, 20 Jul 2018

Tamara Kennedy

$1000
Thu, 5 Jul 2018

John Mellen

$100
Sat, 30 Jun 2018

Anonymous

$35
Sat, 30 Jun 2018

Yvonne Witts

$50

So impressed and proud of your walking team who achieved such a wonderful walking record. I was very happy to meet and converse with Trish and Tamara at the Narellan Hotel last night. Thank you for all you are doing for Scleroderma research. I am also personally affected by this disease and it was lovely to discuss the issues with Trish as well as Tamara. Again many thanks

Fri, 29 Jun 2018

Amy Young

$30

Well Done on your huge effort - Amy x

SINCE  Feb 2018

60 

Donations

$11,245 raised

TARGET $15,000

Please support this cause

$
AU

I'm raising Fundraising For

charity-logo

The Scleroderma Association of NSW

The Scleroderma Association of NSW Inc. is a charitable organisation whose aim is to increase support and awareness for Scleroderma sufferers in the NSW Community.

About Fundraiser

Tamara Kennedy

Pemulwuy NSW

SINCE  Feb 2018

60 

Donations