'Supermarkets Don't Sell Bones'
To have one child diagnosed with Morquio A is heartbreaking. For the Horders, with two children, the impact is immeasurable – emotionally, physically, medically, socially and financially.
Our beautiful friends Max, 13 years, and Mila, 12 years, have an extremely rare disease that is damaging their bones, affecting their growth and mobility.
Our beautiful friends Max, 13 years, and Mila, 12 years, have an extremely rare disease that is damaging their bones, affecting their growth and mobility.
Tue, 5 Jul 2016
Anonymous
$500
Wed, 29 Jun 2016
Anonymous
$300
Thu, 23 Jun 2016
carmel barber
$30
Ask all your supporters to petition the Government for the medication you need. Bless you kids. Hope they find a cure for this so you can run again.
Sun, 29 May 2016
Karen Nitch
$200
We hope this can help towards getting the medicine you need, to help stop you're bodies feeling the pain from this degenerative disease.
Sun, 29 May 2016
Anonymous
$500
Sun, 29 May 2016
Simon Millar
$200
Thinking of Max and Mila and their family. Also will be signing the petition at: https://www.change.org/p/sussan-ley-the-pbac-need-to-approve-the-life-optimizing-treatment-of-vimizim-for-max-and-mila
I watched these two gorgeous little kids on The Project and was so moved by their story but also by how kind and caring they both were. I wish Max and Mila and your family nothing but the best. I hope from the bottom of my heart they get access to the medicine and treatment they need. Much love. xox