Lynch Syndrome Australia is an all-volunteer run national charity dedicated to improving the lives of the tens of thousands of Australians affected by Lynch syndrome.
Lynch syndrome is an inherited genetic predisposition towards a number of different cancers. Australians affected by this condition are not only at a significantly increased risk of developing cancer, when compared with the general population, but they are more likely to be diagnosed at a much younger age and be diagnosed with more than one primary cancer in their lifetime. These cancers include, but are not limited to bowel, endometrial and ovarian.
Equipped with the knowledge of this condition, Australians living with Lynch syndrome are able to undertake preventative measures and employ a strict surveillance regime in hopes to prevent cancer, or detect it at a much earlier stage. Knowledge of this condition has the potential to save lives.
Unfortunately, with an estimated 1 in 280 Australians affected by Lynch syndrome, only a small percentage have been diagnosed, leaving far too many unaware and vulnerable.
One of the largest challenges Lynch Syndrome Australia faces is spreading awareness of this condition across the nation and in particular, the medical community to encourage prevention and early detection of cancer in this vulnerable population. We do not believe that Lynch syndrome should be diagnosed after an individual gets cancer, we believe that a proper education and increased support of those aware will lead to earlier diagnoses and improved outcomes.
In addition to increasing awareness of this condition and promoting the value of surveillance regimens, Lynch Syndrome Australia works to provide encouragement, education and support to individuals affected by Lynch syndrome and their families to enhance hope amongst the Lynch syndrome community, whether in person, at conferences, at events or through community engagement.