Our little Adam.

Thank you for visiting my fundraising page and supporting my campaign to raise money for The Royal Children’s Hospital Foundation.


My beautiful boy Adam who was born at 26 weeks weighing 624 grams has been recently diagnosed with a rare condition called Polymicrogyria.

Polymicrogyria (PMG), is a condition characterized by abnormal development of the brain before birth. While a baby is still in the womb, neurons are migrating to where they are supposed to go. For some reason, the neurons become disorganized and land in the wrong places. The surface of the brain normally has many ridges or folds, called gyri. In children born with Polymicrogyria, the brain develops too many folds, and the folds are unusually small. The name of this condition literally means too many (poly-) small (micro-) folds (gyria) in the surface of the brain. These small folds do not process the information it receives like a normally formed brain.

Adam has been diagnosed with Bilateral Polymicrogria.

Bilateral forms of polymicrogyria tend to cause more severe neurological problems. Signs and symptoms of these conditions can include recurrent seizures (epilepsy), delayed development, crossed eyes, problems with speech and swallowing, and muscle weakness or paralysis. The most severe form of the disorder, bilateral generalized polymicrogyria, affects the entire brain. This condition causes severe intellectual disability, problems with movement, and seizures that are difficult or impossible to control with medication.

We are patient and hopeful to see our little boy grow and kick goals. We have set up this page not to only shed some light to this rare condition but with your help to support the Royal Children Hospital by donating money to support children who are unwell.

Thank you all and we cant wait to show you how Adam is progressing!