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The trick to life is to just keep breathing.

$3,225 raised

From 42 Donations
TARGET $3,000

Please support this cause

AUD
$
Thanks for visiting my Fundraising Page for Be Breathless for Pulmonary Hypertension! On November 6th 2018, I was lying on a hotel floor in another country, believing that I was having my last breath. Suffering massive pulmonary emboli, I was then hospitalised for two weeks to ensure that my unborn child was ok. Roll on a few years and my breathlessness did not ease, and follow-up tests resulted in the beginning of pulmonary hypertension, a disease which for most, is incurable. The expectation from the specialists was that if I did not have surgery, I would be highly unlikely to see my daughter get to intermediate and my son graduate high school. In June 2020, I was the 71st patient at the Alfred Hospital who had Pulmonary Thromboendarterectomy (PTE). This surgery is an 8- to 10-hour procedure that involves opening the chest and attaching the patient to a heart-lung bypass machine, then cooling the patient’s body to about 17-20 degrees (Celsius). The cold temperature reduces the body's need for oxygen and provides organ protection during this unique surgery. For the critical parts of the surgery, the surgeons turn off the heart-lung machine, stopping circulation for up to 20 minutes, to create a bloodless surgical field. Then the surgeons open the arteries blocked by chronic clots and scar tissue. They repeat the on-off process with the heart-lung bypass machine until all of the obstructing material is removed. In total, they stopped and restarted my heart four times. Over the past two years, the PHA of Australia have been my support line, offering advice, including recommending the specialists that I now have. So now, I want to return the favour. Being breathless for Pulmonary Hypertension is now a little more simple (as I am still in recovery), my goal for the next 14 days is to walk 3km everyday, totaling up to 42km to raise awareness for Pulmonary Hypertension. You can sponsor me and leave a message by selecting the donate button above. Thanks for supporting our efforts in raising money for this cause!
Update
02 Dec 2020
Today's the day! Day surgery to establish whether the surgery in June was successful. This morning I will be having a wire inserted into my heart to measure the pressure (hopefully it will come back as normal) and then in the afternoon I will have a VQ scan where I breathe radioactive isotopes to see if the oxygen is transferring to my blood ok. Thank you all for your GENEROUS support to the PHAA, I am overwhelmed and very emotional about the amazing contributions you have given. Big love to you all, I am truly blessed to know so many kind-hearted souls. Fingers crossed for a great outcome!
Update
25 Nov 2020
Hi Team! I have been a bit slack posting to my fundraising page due to my mobile phone dying an untimely death, so now I have to actually sit down in front of a computer and write my updates! Just wanted to thank you all so much for your donations, it is so humbling and I thank you all. I am currently sitting at 25km out of my 42km, so running a bit behind! 4 days left of my two week challenge to knock out 17km, but it can totally be done especially when you have wonderful stretches of walks like this (Pictured).
DONATIONS42
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Dumanski Family
Wed, 2 Dec 2020
$ 30
$ 30
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Clare Gibson
Mon, 30 Nov 2020
$ 25
Such an inspiration to all. Whilst you fight your own battles to breathe, you selflessly think of others. One in a million beautiful ?
Such an inspiration to all. Whilst you fight your own battles to breathe, you selflessly think of others. One in a million beautiful ?
$ 25
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Tamara Lindsay
Mon, 30 Nov 2020
$ 20
You are amazing x
You are amazing x
$ 20
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Sarah Dower
Mon, 30 Nov 2020
$ 50
Keep up the good work, Joss.
Keep up the good work, Joss.
$ 50
Rachael Taylor
Mon, 30 Nov 2020
$ 100
Well done Jossy, you are an absolute superstar xo
Well done Jossy, you are an absolute superstar xo
$ 100
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Karen Jay
Mon, 30 Nov 2020
$ 325
Breathe deep seek prace
Breathe deep seek prace
$ 325
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Michiko Myers
Sun, 29 Nov 2020
$ 25
$ 25
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Anna O'Brien
Fri, 20 Nov 2020
$ 25
$ 25
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Anya Saluka
Thu, 19 Nov 2020
$ 25
Lots of blessings Jose!
Lots of blessings Jose!
$ 25
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Anonymous
Wed, 18 Nov 2020
$ 100
$ 100
RAISING FUNDS FOR
charity-logo
Pulmonary Hypertension Association of AustraliaPHA Australia provides hope, support and education, and promotes awareness of this disease to the public through advocating for the pulmonary hypertension community. PHA is not a charity

Campaign Creator
Joss Pohl
Created Nov 2020

MY BADGES
50% raised
20+ donations

$3,225 raised

From 42 Donations
TARGET $3,000

Please support this cause

AUD
$
RAISING FUNDS FOR
charity-logo
Pulmonary Hypertension Association of AustraliaPHA Australia provides hope, support and education, and promotes awareness of this disease to the public through advocating for the pulmonary hypertension community. PHA is not a charity
Campaign Creator
Joss Pohl
Created Nov 2020
MY BADGES
50% raised
20+ donations