In 2009, Donna stopped work as it was becoming too tiring and stressful. Having brought up two boys and then returning to work, it was thought it was time she had a rest so Donna gratefully agreed we could survive on one wage and started her new life as a lady of leisure. Unfortunately the fatigue did not abate and she started to become unsteady on her feet. After a few GP visits and finally a referral to a Neurologist, Donna was diagnosed as suffering from Multiple Sclerosis in 2011. After some trials of standard MS medication the progression of the disease continued and in 2013 Donna was prescribed Gilenya, a second stage medication. This seemed to stop the progression but in the last 6 months the MS has again progressed and confirmed by her latest MRI. Our specialist has advised us that her only option now is for a stem cell transplant. Unfortunately, for various reasons, stem cell procedures for her level of MS is not available in Australia. The only options are either the US, Russia or Germany which all have long waiting lists and of course a long trip and high costs. The closest place that offers the procedure is Singapore and was recommended by her specialist as an excellent option. The cost for just the transplant is $110,000AU. On top of this are costs for flights and a minimum 3 month stay in Singapore. Donna is stubborn and proud and is determined to not let this disease beat her. She is only 47 with grown up children and has a lot of life to look forward and unfortunately it may be a future confined to a wheelchair unless we can get her to Singapore. As her friends and family know, Donna is the kindest and the most caring person you could ever meet and I hope for her sake that some of what she puts out, comes back to her.
All the best From Charlie, Tiny, Sandie and Elaine at The Green Shed