THE CJD SUPPORT GROUP NETWORK
- provides and maintains a network through which those at low risk of contracting CJD as a result of medical procedures, including recipients of human pituitary hormones (hPH), can interact with each other and provide mutual support, share information and discuss relevant issues and concerns.
- provides support for individuals with a genetic predisposition to CJD.
- provides assistance to families who are caring for or coming to terms with the loss of a loved one to CJD.
- can act as an advocate with appropriate health care professionals on behalf of people who have concerns or experience diffculties accessing medical treatments, including infection control issues.