FOP is one of the rarest, most disabling genetic conditions known to medicine, causing bone to form in muscles and other soft tissue. Whenever extra bone is formed across joints it permanently restricts movement. It is a progressive disease and there is no cure.
FOP Australia is a registered charity and the national organisation established by FOP families to support people living with FOP and support the global effort to find a cure. Our goals include raising awareness of FOP amongst the community and clinicians, and linking people living with FOP in Australia and New Zealand together.