The OI Society supports individuals with the medical condition known as Osteogenesis Imperfecta (aka "Brittle Bones") and their families throughout Australia.
The Society also provides funding to local medical research programmes and research studies relating to OI.
The aims of the Society include:
Provide information and support to families at diagnosis, whether prenatally or after birth
Collating and providing information on OI to family support services, daycare centres, schools, employers and other parties for OI patients as needed
Compiling records on a network of medical professionals throughout the country where OI patients may refer for medical assistance
Collecting and collating information about equipment suppliers: wheelchairs, mobility devices, home improvements and motor vehicle modifications etc
Collecting and collating information about OI research in Australia and overseas to pass on to OI patients and local medical practitioners as required
Providing a social network for OI patients and their families to share personal information, experiences and resources
Thanks for your interest in the OI Society!