Imagine geing a kid or teenager and being told you have a geneitc, degenrative muscle disease which will rob you of your mobility and lead to a loss of muscle co-ordination, life in a wheelchair, fatigue, vision imparment, hearing loss, slurred speech, and then a serious heart condition - this is Friedreich Ataxia. Approximately 1 in every 30,000 Australians are affected and almost 1 in 90 are carriers and often don't know it. Today there is no treatment or cure.
Friedreich Ataxia Research Assciation (fara Australia) is a not-for-profit organisation whose sole purpose is to fund research to find treatments and a cure for friedreich Ataxia (FA).
fara Australia does not receive State or Commonwealth Government support and relies largely on the family and friends of Friedreich Ataxia patients and generous businesses within Australia to fund its research programs.
Our priorities are to:
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Identify and fund the most promising research and cutting edge therapies
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Support the Friedreich Ataxia patient clinics
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Raise funds through events, corporate partnerships and community fundraising
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Promote knowledge sharing and collaboration within the scientific community and medical profession
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Engage with the FA patient community and their families
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Raise awareness of FA within the community and scientific and medical professions