Dystonia Network of Austalia Inc. (DNA) evolved from the local Blue Mountains & Greater Sydney Dystonia Support Group which meets bi-monthly in Leura. The idea took shape when Kerrie Jackson, the founder and coordinator of the Blue Mountains group in 2005, planned to attend part of the Parkinson Disease & Movement Disorder World Congress June 2013 as she had in many conferences before, when she received a message from Lee Pagan from the Australian Dystonia Support Group (ADSG) asking if anyone would like to hold a stall at the Congress.
Kerrie jumped at the chance as she was always thinking of ways to spread the word about Dystonia and to let people know about the Blue Mountains Dystonia Support Group.
The Dystonia Network of Australia Inc.(DNA) was made possible with the assistance of Laraine McAnally, a retired Movement Disorder Clinical Nurse Consultant, a dedicated committee and a prestigious medical and allied health advisory board experienced in Movement Disorders.
DNA is a registered charity and has Donor Gift Recipient status. DNA provides a pathway to support, information, literature and community awareness for adults and children living with dystonia and their carers and health providers.
Our aims are:
- To provide appropriate, researched information for adults and children with
dystonia, their carers and interested health providers
- To increase community awareness of the condition
- To ultimately fund seminars and assist with research into dystonia