Eternally EAK was developed as a means to raise awareness and much-needed funds for the research of Rett Syndrome. The name was created using the names of three sisters, one of whom was born with Rett Syndrome. The girls believe strongly that 'family is everything' and have long wished to do their part to raise awareness for this rare disorder.
In addition to this campaign, Eternally EAK is organising a fundraising evening at the Schonell Theatre in Brisbane where the musical 'Forbidden Broadway' will be performed.
Money raised will help to ensure that much-needed research, equipment, and capital improvements can be made to the Rett Syndrome gene research department.