Hi my name is Pam, on the 20th October 2020 I will be starting a kayaking journey around as much of the northern part of Lake Macquarie NSW as I can paddle Starting at Speers Point,to help raise awareness for people suffering with Inclusion Body Myositis, IBM .
My friend Siggy , has this rare disease , unfortunately not many doctors are aware of this disease and it is often misdiagnosed as normal ageing . I would like to raise
some money to help with more research,treatment and awareness for this disease .
Inclusion Body Myositis (IBM), is a rare inflammatory muscle disease characterized by slowly progressive weakness and wasting of muscles in arms and legs , if you would like to learn more about IBM I have included this link to the web site, https://myositis.org.au/inclusion-body-myosit-info/
Join in this adventure and Kayak the lake with me or make a donation.
I have chosen Tuesday 20th Oct 2020 to start this kayak paddle as it would have been my Grandmothers 120th birthday