Lupus Awareness Month
$65 raised
TARGET $2,000
Please support this cause
$
AUD
About
Please help me raise much needed funds for the Autoimmune Resource & Research Centre (ARRC) during Lupus Awareness Month. ARRC has wonderful programs and are dedicated to improving the quality of life for people living with lupus and other associated autoimmune illnesses. They receive nil government funding. I hope my story inspires you to find your own support network and helps you to live a life, not an illness. "NO-one is (EMU)ne to Autoimmunity"
Lupus is a complex inflammatory autoimmune illness that is not rare. Rates of prevalence in our Australian Community are commonly reported as 1:700. Female young adults are found to have high prevalence with smaller prevalence in male members of our community with rate differences of nine females to one male.
Lupus is a chronic disease and can range from mild to severe with some people experiencing life threatening organ damage. Regardless of severity, lupus impacts greatly on the quality of life of those that live with it daily. Lupus for many people can be medically managed to lessen its impact. Education and research is vital to help solve the mystery around this disease.
The disease is characterised by a wide range of symptoms including muscle and joint pains, repeated infections, skin rashes, seizures, blood and immunological disorders and ulcerations to name a few. The butterfly is used as the symbol of lupus as it represents the facial rash that many experience. Importantly, many symptoms are invisible with lupus being able to affect any organ of the body with the heart and kidneys being of particular concern.
Symptoms can change over years and recur becoming more severe and then subsiding. Like asthma, lupus patients can experience periods of wellness and then experience a period of sudden symptom exacerbation know as a flare. Managing the condition through medical support, monitoring of symptoms and implementing lifestyle changes can reduce the impact of the disease.
Diagnosis of this complex illness can take time many years from symptom onset to final diagnosis being commonly reported across the world. This diagnosis delay can be a result of symptoms being non-specific and commonly experienced within the community, but also resultant of a lack of awareness & knowledge within the general & medical community. ARRC's lupus brochure:- https://www.autoimmune.org.au/wp-content/uploads/2017/03/Lupus_brochure.pdf
Yours sincerely
Stacey Brandon xo
Lupus is a complex inflammatory autoimmune illness that is not rare. Rates of prevalence in our Australian Community are commonly reported as 1:700. Female young adults are found to have high prevalence with smaller prevalence in male members of our community with rate differences of nine females to one male.
Lupus is a chronic disease and can range from mild to severe with some people experiencing life threatening organ damage. Regardless of severity, lupus impacts greatly on the quality of life of those that live with it daily. Lupus for many people can be medically managed to lessen its impact. Education and research is vital to help solve the mystery around this disease.
The disease is characterised by a wide range of symptoms including muscle and joint pains, repeated infections, skin rashes, seizures, blood and immunological disorders and ulcerations to name a few. The butterfly is used as the symbol of lupus as it represents the facial rash that many experience. Importantly, many symptoms are invisible with lupus being able to affect any organ of the body with the heart and kidneys being of particular concern.
Symptoms can change over years and recur becoming more severe and then subsiding. Like asthma, lupus patients can experience periods of wellness and then experience a period of sudden symptom exacerbation know as a flare. Managing the condition through medical support, monitoring of symptoms and implementing lifestyle changes can reduce the impact of the disease.
Diagnosis of this complex illness can take time many years from symptom onset to final diagnosis being commonly reported across the world. This diagnosis delay can be a result of symptoms being non-specific and commonly experienced within the community, but also resultant of a lack of awareness & knowledge within the general & medical community. ARRC's lupus brochure:- https://www.autoimmune.org.au/wp-content/uploads/2017/03/Lupus_brochure.pdf
Yours sincerely
Stacey Brandon xo
I'm raising funds for
Autoimmune Resource and Research Centre
No-one is immune to autoimmunity.1 in 20 people live with autoimmune illness (AI) the 3rd most common chronic disease group. Autoimmune Resource and Research Centre (ARRC) services aim to reduce the impact & disease burden of illness enhancing quality of life through education, support & research.
SINCE Oct 2018
2
Donations
$65 raised
TARGET $2,000
Please support this cause
$
AUD
I'm raising funds for
Autoimmune Resource and Research Centre
No-one is immune to autoimmunity.1 in 20 people live with autoimmune illness (AI) the 3rd most common chronic disease group. Autoimmune Resource and Research Centre (ARRC) services aim to reduce the impact & disease burden of illness enhancing quality of life through education, support & research.SINCE Oct 2018
2
Donations
Get stuffed Lupus!!