Little Kush (https://www.facebook.com/FoxG1Australia/videos/1583517211943559/) has been diagnosed with the profoundly debilitating single gene disorder FoxG1, doctors, scientists, riders, runners, brothers, sisters friends, neighbours, strangers and everyone is trying their best to help him run like a normal kid and lead a life like every other child.
The research team led by Harvard and MIT researchers is finding the best projects to kick of research on and get to a cure in the fastest possible way. Every breath is crucial for Kush. This birthday, help me share this super important message with all of you my friends and please help make this special day of mine truly special by making a real difference in someone’s life. Donate whatever, even if a dollar, to help us raise the $7,000,000 for a gene therapy cure for FoxG1. This is his research team here: http://www.foxg1research.org
FoxG1 foundation works with families, carers, researchers, health professionals and the public to raise awareness and find a cure for FoxG1. We are the only foundation that is 100 % focused on research on FoxG1 syndrome, support, increasing diagnosis and finding a cure for this debilitating disorder.
FoxG1 foundation works with families, carers, researchers, health professionals and the public to raise awareness and find a cure for FoxG1. We are the only foundation that is 100 % focused on research on FoxG1 syndrome, support, increasing diagnosis and finding a cure for this debilitating disorder.