BrAshA-T Ataxia-Telangiectasia Limited organisation was founded in 2007 by a Brisbane (Australia) family after two of their young children, Brady 9 and Ashleigh 8, were diagnosed with A-T.
Determined to do something about their situation, parents Sean and Krissy created the organisation called BrAshA-T to raise money to support research into finding a cure and as a means for creating a support network for other families dealing with A-T.
Our Mission
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Research - fund medical research into the causes, prevention and treatment of A-T
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Awareness - engage in activities to raise community awareness of A-T
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Support - provide emotional support and limited financial assistance for sufferers of A-T
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Fundraising - engage in fundraising activities to make it possible to fulfil Our Mission
In setting up a Charitable Foundation we can start to help fund research currently underway at the QIMR (Queensland Institute of Medical Research in Brisbane, Australia) for this disease. Professor Martin Lavin is leading the research efforts into A-T at QIMR and funding is desperately needed for research into this disease.
As Ataxia-Telangiectasia is such a rare disease (approx 25-30 diagnosed children in Australia), families feel very isolated and alone. Our goal is to change this for families and let them know they are not alone and someone is fighting for their children’s future.