Earlier this year I befriended a lovely couple at choir. Over time I found out that they have a daughter with Cystic Fibrosis (CF). You may actually have seen her in the media - her name is Julia Goodwin. Not only is she an Ambassador for Cystic Fibrosis NSW, she was also a finalist in Miss World Australia last year, and is an accomplished singer.
Julia is lucky compared to some other people who have the illness.
CF is a lifelong disease and there is no cure. In Australia one baby is born with it every four days.
CF is a recessive genetic condition that affects multiple organs, most commonly the lungs and pancreas, by clogging them with sticky mucus. Repeated infections and blockages can cause irreversible lung damage and even death.
It can take people with CF up to two hours to administer their
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- Charity
![]() | Cystic Fibrosis NSW Every 4 days, a child is born with Cystic Fibrosis, Australias most common life-threatening recessive genetic condition, for which there is no cure. CF provides a range of support and information services to assist people living with CF and their families and contributes to important research. |



